INVISIBLE MAN
A prosaic poem on male identity VS Fibromyalgia (FM) & Myalgicencephalomyelitis (ME/CFS), and how we may overcome the battle by sharing our experiences and raising our collective awareness. TRIGGER WARNING: themes of mental/physical distress.#chronicillness #chronicpain #invisibleillness

invisible because
no one wants to see a naked broken man in pain.
miserable because
no one wants to see a naked broken man in pain.
workmates, colleagues, bosses, clients
want to know your getting better
when are you coming back too work
it’s been ages
your an expense on my balance sheet
your letting your team down
your ruining my business
your continued absence is
irrational selfish mundane
because
no one wants to see a naked broken man in pain.
doctors dismiss you
tell you it’s all in your head
tell you you’re imagining it
tell you you’re a hypochondriac
tell you your brain is in control
think positive
try some yoga
try some herbal remedies
a naturopath
acupuncture
think positive
push through it
drink water
mindfullness
try anything
think positive
because
no one wants to see a naked broken man in pain
specialists
very willing to take your money
money paid for in literal blood pain tears
money you have been entropically earning
money which now has to stretch to three times its value
money for your wife
money for your kids
money for your massive expenses
which are suddenly not so necessary
specialists
very willing to take your money
upfront sometimes
very willing
yet unwilling
to diagnose
to agree
to recommend
to confidently state
what you have
is chronic
is invariable
is not going to change
is a life sentence
all that studying
all that in the job training
all that money
and they still look very uncertain
because
no one likes to see a naked broken man in pain.
it’s your obesity
it’s sleep apnoea, no? well heavy snoring, obviously
it’s your bitterness and resentment towards the world
its your workaholic lifestyle
your too young to be chronic
your too young to write off as permanently incapacitated
it’s minute spurs in your bones which you cannot see but that must be the cause
it’s a bulging disc in your fifth vertebrae which we can just see here if you squint
it’s your work life balance
it’s your lack of exercise
it’s too much exercise
it’s your chaotic diet
it’s your toxic work life balance
it’s old age
it’s anything but chronic
because
no one wants to see a naked broken man in pain
toughen up
be a man
be strong
snap out of it
get up and go
power nap
think positive
you need to focus
you need to set goals
you need to plan ahead
pacing have you heard of pacing
incremental adjustments
minute incremental adjustments
think positive
have you tried mindfulness?
just look at your hand and mentally force it to stop feeling pain
tell your hand it is not in pain
tell it it is not in pain
but don’t talk to me about it
stop catastrophising
no one wants to hear you
no one wants to see you
naked
broken
and in pain
and finally it’s close friends
finally it’s family
exasperated
i don’t know what to do with him
he doesn’t want to get out of bed
he doesn’t want to leave the house
whenever he is with the kids he is angry
they end up crying
he ends up crying
i don’t know who he is anymore
i don’t understand what went wrong
what did i do wrong
what did i do to deserve this
he is not the man i married
he is not their father anymore
he can’t be trusted
he has lost it
he is angry all the time
we just can’t talk to him anymore
i can’t talk to him anymore
i am leaving him
he has already left us
because
no one wants to see a naked broken man in pain
not your workmates
not your boss
not your doctors
not your friends
not your family
and especially
not your wife and kids
but most of all
all this time
You
You did not want to see a naked man in pain
so you got worse and worse and worse
till you broke into pieces all over your
work home life
and now
broken naked and in pain
now
You finally see You
You finally see me
and You finally know
that You are a naked
broken man
in pain
until you are ready to see the naked broken man
until you can accept this sight that no one wants to see
You cannot possibly find a way to be
You must meet me
at the bottom
at the darkest spot
of the deepest well
within your psyche
I will be waiting there for you.
and when we meet
You will see it was not me you were coming to meet
it was You all along
your naked broken self in pain
hopeless and helpless
I can only hope your meeting is a reckoning
a spark
a rite of passage
a surging flame of force to be reckoned with to rise up
and survive.
So now
in this moment
at Your very naked self
vulnerable and broken
days weeks months years of
being invisible
now that you see
what will you do?
the only way to help a
naked broken man in pain is
help him heal
give him warmth
give him love
give him nourishment
and listen to his pain
he will whisper something to you
a whisper becoming a voice of reason
a resounding scripture of strength
I am a survivor
I am a survivor of a chronic illness
I am capable
I am strong
I am resilient
I will not be shunned
I will not be pushed to the side
I will not be labelled a liar, hypochondriac or thief
I am a survivor of a chronic illness.
And your awareness
Your capacity to change
Your capacity to define
Your capacity to to speak
Your capacity to express
Your empowerment
Is My Catalyst
And that is strength
that is a suit of armour
that is power
that is empowering
find that strength
and grow
and become
and shine as a
About the Creator
Esteban
Wordsmith, Father, Husband, Homemaker, Artist, Yogi, Sleever, Gamer, FM&ME/CFS Warrior, LightSeeker. #notgivingin . Raising awareness of #chronicillness and #chronicpain especially regarding #Fibromyalgia and #Myalgicencephalopmyelitis.



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