Longevity logo

Livin' with Lupus

And why it's my super power

By Miss D.Published 7 years ago 2 min read

There I am, scars and all. I used to be really conscious of the scars. I would fret about not being perfect and about being judged. Then I realized those who judge have a lot bigger issues than lupus. Being diagnosed with lupus seemed like a death sentence in the beginning; granted, it did come with complications (the biggest of which is a platelet disorder called TTP). Both are lethal. My first thought was, "How do I get control of this thing?" Took a few years of trial and error, but the answer was patience, diligence, and a profound respect for my body. I changed every aspect of my life to do battle with this thing. The way I eat, the way I think, the way I work, I even had to change some of my friends. Yep, it's true. When you get really sick, you find out some people just can't hack it. For me, those were the "just be quiet and let the doctor run the show" people. They don't want to take anything that's not prescribed. They don't want to learn about nutrition. They don't want to lose weight. They don't want to expand their mindset. They THINK that a person has no control over what happens to them. It's always out of their hands. My take on that was, and still is, BULLSHIT!

It is NEVER out of your hands. Of course things will happen that you can not control. Like, who knew my dad was a carrier for two of the most deadly illnesses on the planet? But you work with what ya got, and you make lemonade out of lemons. So I studied and asked questions from every doctor I had. Wanna know what I found out?? Outside of their specialty—they are clueless. The other thing I learned is, if you don't demand it, they don't share information until you are critical. Getting a dialogue going was not easy. After I started looking into alternative medicine, it was even harder. However, as I turned around and got stronger, they opened up and started taking note of my input in the recovery process. My determination to be proactive was paying off.

Flash forward seven years. I thankfully remain in remission from the TTP, and my lupus in manageable. It is a blessing in every sense of the word. I guess my point here is that you can make a difference in your own life if you roll up your sleeves and do the work. Now I wear those scars with pride. They are signs of a battle won. Will there be more? Probably. They will add to my character and dimension.

health

About the Creator

Miss D.

I have worn many hats, lived in a few places and lead a couple of different lives. Stories abound.

Reader insights

Be the first to share your insights about this piece.

How does it work?

Add your insights

Comments

There are no comments for this story

Be the first to respond and start the conversation.

Sign in to comment

    Find us on social media

    Miscellaneous links

    • Explore
    • Contact
    • Privacy Policy
    • Terms of Use
    • Support

    © 2026 Creatd, Inc. All Rights Reserved.