I'm still very new to the whole "I have an Autoimmune Deficiency" way of life and means of living. I was diagnosed in September, during my second hospitalization, in 2016. It was the worst thing to happen to a young person, such as myself, and quite possibly the best.
I was stuck in a hospital bed for a week. I was freezing, dehydrated, and delirious. All I craved was water and some sleep. I hadn't really thought about why nor did I really think about what could have been causing all my illnesses.
Just before I was going to be released, one of the doctors—he worked for the CDC—had come to see me off, but had something to tell me. It was very important and would change my life. He told me I had Mannose-Binding Lectin Protein Deficiency (MBL2).
It's a common deficiency, yet a high number of doctors know very little about it, and my case was quite rare. I was honestly surprised since it was common from what I'd been reading and yet, whenever I went to the doctors, they had no idea what I was talking about.
A healthy person has around 100 of these proteins in their blood. Most people with this deficiency are known to have about 20-40, while I... to my dismay... had less than 0.05. There is no cure and the main way to prevent another illness outbreak is less than trivial; antibiotics, healthy diet, and good hygiene. At the same time, it's very difficult for someone like me—who suffers from memory problems—to keep track of every little thing, and that causes me to fall ill more often than I'd honestly like.
This turn of events disrupted my life more than when I was held back due to insufficient transfer credits. I couldn't focus on my work, I couldn't catch up with said work, and I felt more confused than relieved to finally know what was going on with me. I fell behind in school and missed so many days. It got to the point where I had to drop out a quarter of a way through my 11th grade year. I do regret leaving and not pushing myself through it, but what could I have done when I was so weak and unable to keep up with all that work? I would have been held back again and I knew I wouldn't be able to do that.
I know it's going to be a really long time before I'm used to having to live with such a thing swirling around in my mind and in my everyday life. It will also be a huge challenge to find work, other than this site, to help support myself and even harder to find insurance that won't burn a hole in my pocket that can cover everything I need, including the antibiotics used to prevent from dropping in a fit of dehydration and exhaustion.
What am I going to do if I don't get insurance any time soon and another infection occurs? Nothing. I can't really do a whole lot because I have no way to. I'm currently trying to get myself onto SSI and it's taking a super long time, longer than I had hoped.
Why? The infection that kept happening over and over again is slowly starting to build in the same spot and I'm out of my medications. I can only get super cheap antibiotics or foods that'll keep me going until then and it's not really working. I'm scared I will die this time around. I'm really scared.
About the Creator
Ady Friel
I'm Ady Friel. I'm a 24-year old Non-Binary (He/They) Aroace. I’m currently living with my parents due to health. I'm an avid writer and often times super opinionated. I love to tell stories and what's on my mind.
Day 4 of Quitting
If this is how sobriety feels, maybe it’s better to go through life a little buzzed… this, along with other hits like, I want to kill myself, I wish I was dead, and I’m going to throw myself off a bridge have been the only thoughts on rotation these past few days. I promise myself that if, in a month, I still feel like this (‘this’ meaning despondent, full of rage, and simultaneously numb) I can go back to smoking. Until mid-February though? Nicotine is off the table.
By sleepy drafts6 days ago in Longevity
Stricter blood pressure guidelines are fueling growing unease among cardiologists, raising concerns about overdiagnosis and treatment
Recent changes in blood pressure guidelines have sparked a quiet but growing unease among cardiologists and healthcare professionals worldwide. As medical authorities lower the threshold for what is considered “high blood pressure,” millions of people may suddenly find themselves classified as hypertensive, prompting new questions about overdiagnosis, overtreatment, and the balance between preventive care and unnecessary medical intervention. The Shift in Blood Pressure Standards For decades, blood pressure readings below 140/90 mmHg were generally considered normal for most adults. However, in recent years, both the American Heart Association (AHA) and other international health bodies have revised their guidelines, lowering the threshold for hypertension to 130/80 mmHg. This change was driven by mounting evidence linking even moderately elevated blood pressure to cardiovascular events such as heart attacks, strokes, and kidney disease. While the intent behind stricter guidelines is clear—catching potential risks earlier to prevent serious health issues—the practical implications are complex. Suddenly, a large portion of the adult population falls into the “high blood pressure” category. In the United States alone, experts estimate that nearly half of all adults would now be labeled hypertensive under the new standards. Cardiologists Sound the Alarm For many cardiologists, the shift raises concerns about overdiagnosis. Dr. Elena Martinez, a practicing cardiologist in New York, says, “We are medicalizing a huge swath of the population who may not have needed treatment before. While preventive care is vital, there’s a real risk of unnecessary medication, side effects, and patient anxiety.” These concerns are not purely theoretical. Blood pressure medications, while life-saving for those with severe hypertension, can cause side effects ranging from dizziness and fatigue to kidney complications. Prescribing them to patients with mild elevations might not always result in a net benefit, particularly if lifestyle interventions could have been sufficient. The Role of Lifestyle Interventions Many experts emphasize that lifestyle modifications—such as regular exercise, reduced sodium intake, weight management, and stress reduction—remain the first line of defense against high blood pressure. The stricter guidelines may push physicians to prioritize early lifestyle counseling, but in practice, patients often expect a prescription as a tangible solution. Dr. Ahmed Khan, a public health specialist, notes, “The risk is that the pendulum swings too far toward pharmacological solutions when, for many, diet and exercise could prevent progression without the risks of medication. It’s a delicate balance that requires careful patient education.” Public Perception and Anxiety Beyond the clinical implications, stricter guidelines can affect public perception of health. Patients newly labeled as hypertensive may experience anxiety, feel stigmatized, or overestimate their immediate risk of serious illness. Mental health impacts are rarely discussed but are an important aspect of overall cardiovascular wellness. Media coverage and public awareness campaigns have also contributed to heightened sensitivity. Headlines emphasizing the dangers of “high blood pressure” may inadvertently increase stress among readers, ironically exacerbating the problem they aim to address. Economic and Healthcare System Pressures The broader healthcare system also feels the strain. More diagnoses mean more doctor visits, lab tests, and medications. Health insurance systems face increased costs, while physicians must spend more time managing cases that may not require intensive intervention. Some healthcare analysts argue that the stricter guidelines, while scientifically justified, could inadvertently prioritize pharmaceutical intervention over holistic preventive care. The challenge lies in implementing guidelines in a way that maximizes patient benefit while minimizing unnecessary medicalization. Finding the Balance So, how can the medical community reconcile stricter guidelines with patient-centered care? Many experts advocate for a nuanced approach: Risk Stratification: Evaluate patients based on overall cardiovascular risk rather than just blood pressure numbers. Factors like age, family history, cholesterol, and lifestyle are critical in deciding whether medication is necessary. Emphasis on Lifestyle: Encourage sustained behavioral changes, with medications as a last resort for mild cases. Patient Education: Ensure individuals understand what their blood pressure numbers mean, the relative risks involved, and the options for non-pharmacological management. Regular Monitoring: Use home monitoring devices and ambulatory blood pressure measurement to reduce unnecessary clinic visits and detect true hypertensive trends. Conclusion The new blood pressure guidelines reflect an earnest effort to prevent cardiovascular disease before it starts. Yet, they also highlight the delicate balance between preventive medicine and overdiagnosis. For cardiologists, policymakers, and patients alike, the challenge is clear: avoid the pitfalls of medicalizing normal variations while ensuring those truly at risk receive timely and effective care. As the debate continues, the hope is that a thoughtful, individualized approach—combining lifestyle interventions, patient education, and careful use of medication—will maximize benefits while minimizing harm. The evolving standards are a reminder that medicine is as much an art as it is a science, requiring judgment, empathy, and adaptability in the face of shifting evidence.
By Fiazahmedbrohi 7 days ago in Longevity
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