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Can Dementia Patients Live At Home?

Know the real conditions of dementia patients.

By Shelia BaileyPublished about a year ago 5 min read

Dementia is a challenging diagnosis for both the person and the family. As the condition progresses further, the family faces difficult decisions on how best to decide what is in the interest of the patient. Included among these are one of the most commonly asked questions: can dementia patients live at home?. The following paper examines in great detail the various factors that influence this decision, the pros and cons of home care, and the resources that the family can look to in order to make the optimal decision concerning the well-being of their loved one.

Understanding Dementia and Its Stages

Dementia is not just one single disease but a general term for a group of different disorders affecting mental cognition, such as Alzheimer's disease, vascular dementia, Lewy body dementia, and frontotemporal dementia. Diseases marked by a progressive destruction of memory, thinking, and reasoning compromise daily activities and independent living of a person. Isotropically, the process of dementia goes in stages that often get progressively worse.

Early Stages Dementia

Early stages of dementia are marked by mild cognitive impairment. They may forget what happened recently, may face difficulty in finding the right words, or may experience some difficulties with complex tasks. However, they can for the most part lead independent lives with minimal aid.

Middle Stage Dementia

At the middle stage, the symptoms become more apparent. Patients start to struggle with daily life activities: dressing, bathing, and preparation of meals. Behavioral changes can include agitation, confusion, and mood swings. A patient now requires more consistent supervision and support.

Late Stage Dementia

In the terminal stages of the disease, the patients completely lose all their ability to communicate, recognize even family members or friends, and unable to continue with the simple activities. They start to develop physical symptoms such as difficulty in swallowing and problems with mobility. Patients usually need intensive care, in which case many families seek professional caregiving services or specialized facilities.

Advantages of Dementia Patients Staying at Home

Familiar Environment

Some of the advantages that come with living at home include familiarity with the environment. Familiar surroundings orient and comfort the dementia patient, reducing confusion and anxiety. Being in a known environment can also help them retain contact with their past and better ground them.

Personalized Care

The care can be individualized, taking into consideration the specific needs and preferences of the patient, especially when it comes to his or her routine, diet, and activities. These could greatly improve his quality of life while at home. For example, family members can ensure that the patient's routine, diet, and activities align with his or her habits and preferences, thus improving his quality of life significantly.

Emotional Well-being

This also keeps the dementia patients close to their loved ones. Daily interaction with the family can help dementia patients avoid loneliness and depression, which are common traits in dementia patients. The mood of the patient could be much different and improves with the emotional support of the family and friends.

Flexibility in Care

Home care offers flexibilities that may not be possible in institutional settings. The intensity of the care can also be adjusted to the changes in the condition of the patient, including the introduction of professional caregivers to supplement and/or increase family involvement in caregiving.

Challenges in Dementia Patients Care at Home

Caregiver Stress

Some of the reasons which make caring for a dementia patient challenging at home are as follows: physically and mentally burdensome. The family member is most often identified as the primary caregiver, and this, over time, leads to burnout, stress, and exhaustion. Caregiving demands strain relationships and affect the health of the caregivers.

Safety Concerns

People with dementia may exhibit wandering, forgetting to turn off appliances, and falling as the disease progresses. Making a home safe for a patient with dementia requires constant vigilance and may involve major changes in installing locks, removing hazards, and monitoring the patient closely.

Medical and Care Needs

The medical needs of dementia patients are often complex. In the later stages, they would need to be fed, as well as helped in moving around or keeping themselves clean. Having to manage these needs in the home setting may be difficult to do without professional assistance; it requires the services of home health aides or visiting nurses at times.

Cost of Home Care

While staying at home may seem less costly than institutional care, expenses can add up. Families may hire professional caregivers or invest in home modifications or medical equipment. The financial costs of lost income for family caregivers who give up or cut back their work hours to provide care also must be considered.

When to Consider Professional Care or Assisted Living

There does come a point, however, in the progression of the dementia, where it is no longer practical or safe to continue to care for the patient in the home. It is important for families to recognize the following signs that indicate a higher level of care is required:

  • Increased care need: Patient requires constant supervision, assistance with all activities of daily living, or has complicated medical needs; professional care is available to meet his needs.
  • Burnout of the Caregiver: When the primary caregiver is taking on a huge amount of stress, is becoming exhausted, or health problems start to arise, it is time to consider other options.
  • Safety Issues: When the patient's behavior places them or others in danger, or when a home is no longer safe despite possible modifications, it is full time considering other options.

Assisted Living and Memory Care Facilities

To provide care to the patients with dementia, facilities like assisted living and memory care have been specifically developed. Such homes offer 24 hours of supervision, planned activities, and an environment designed for the needs of patients with dementia. As a whole, the memory care units are designed to offer a secure and supportive environment for the advanced patients with dementia.

In-Home Professional Care

Families needing additional support but seeking to keep their family members in the home may seek in-home professional care. Home health aides, visiting nurses, and specialized dementia care providers may offer respite to family caregivers and assist with activities of daily living and medical care.

Resources and Support for Families

Caring for a dementia patient at home requires a great deal of support. Resources that help a family through this journey include:

  • Support Groups: The contact with other caregivers may yield emotional support, practical advice, and a sense of community.
  • Educational Resources: Most organizations provide information on the care of dementia, such as symptom management strategies to help improve the quality of life for the patient.
  • Respite Care: Respite care services can give the family caregiver some breathing space while their loved one receives the care they need.

Legal and financial planning involves consulting professionals specializing in the fields of elder law and financial planning. This would assist families in getting ready for the costs of dementia care and making well-considered decisions for the future.

Conclusion

Determining whether a person suffering from dementia is capable of remaining at home is an issue that falls strictly within the personal domain. It relies greatly on several factors: the stage of the dementia, the needs of the patient, and the capability of the family in providing the needed care. While home care has its real strengths, such as providing a familiar setting and more personalized care, the challenges must not be underestimated. The family should regularly reassess the situation and seek professional advice in order to ensure that a loved one receives the best possible care.

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About the Creator

Shelia Bailey

Shelia Bailey is a dedicated and passionate writer whose diverse interests span health, technology, senior care, and children’s topics.

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