All aboard the hot mess express

It all started last week when my labs before treatment came back with high kidney levels and low blood pressure. So it it got rescheduled for Feb 4th. February fourth came and for some reason, my blood pressure was pretty low. They were slightly concerned but we continued anyway. I fell asleep for a while during treatment and woke up sweating so badly. We assumed it was a hot flash and didn’t think it was something serious. I went home that night and hydrated as best as I could before falling asleep for that night.

The next morning everything was alright. I had gotten a call from my little sister and I had talked to her through something’s. Before I knew it, I got off the phone to go the potty. I felt fine. Everything was fine until it wasn’t.

I was walking down the steps of the marriage shed, and looked up for some reason. Next thing I know I was on the ground screaming, crying in pain. I had blacked out on the stairs. I went by ambulance because well I couldn’t get up off my butt because my ankle was so messed up.

I was told that I couldn’t eat or drink in case if they had to reset my ankle if I had truly broken it. We called my oncology team to let them know what was going on as well. After some x-rays and some blood work, my ankle was fine, however I was apparently suffering from an UTI, and it was pretty bad. I had a feeling I had one, got tested and it had showed up negative so I never thought about it again.

While waiting for the results, oncology came and talked to me about my blood work. They were not happy that my kidney functions had risen. They were basically scolding me that I hadn’t been drinking enough water. It was literally the day after treatment. I literally fell in the morning and it wasn’t until 8pm was I able to drink or eat anything. I fought back with oncology with this because there was no way for me to stay hydrated during that time. The hospital did give me fluids via IV, but it wasn’t enough according to oncology. They made me so mad that day that when someone yells at me for something that’s not my fault at all, I want to do the opposite and not do as I’m told. However, my family knowing this pattern has been stuffing me with water, and other fluids. Or else they know I’ll go on oncology come Monday when they want me to come in and do some labs.

Ironically around this time last year I was in a boot as well. I had a bone infection that was getting ready to travel up my leg. We almost had to amputate my toe because of it.

With all these health issues it does make me feel alone. I lost my independance. I can’t walk by myself and need an escort to and from my marriage shed. My blood pressure has been low as well. No idea what’s going on with me. I’m scared for future treatments. Thing aren’t going to plan and how many more accidents can I have before anyone takes me seriously that something is seriously wrong.

For now though, I have the support of my family and they are keeping such a close eye on me. They have endured so much because of me, and I don’t know if I can ever repay their unconditional love and patience.