Nautica Heddlesten
Bio
I am just a person wanting to share my journey navigating through life with Chronic Kidney Disease and being on Dialysis. Maybe there are others out there who might find commonality with me and we can ride this coaster together.
Stories (2)
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DOWN, BUT NOT OUT. Content Warning.
Hello, everyone! I have some bad news and some hopeful news to share with you all. So, in the middle of last year, 2024, I had started the process of getting on the Kidney Transplant List. My case was denied due to concerns of blood clots forming and killing the healthy Kidney that would have been transplanted. Cleveland Clinic surgeons denied my case, but University Hospital is going to think over my referral and give me a second opinion. Fingers Crossed. I know what you all are thinking. "Why did you wait so long in trying to get a Kidney Transplant"??!! Well, the long and the short of it is that 1) I did go through the process and was successful in getting put on the list back in 2016 and 2) I had way too much going on in my life at the time, so keeping on top of everything was difficult. When I first got my case accepted and was put on the Kidney Transplant List, I did everything that I was supposed to do, and the coordinator let me know that the only thing that they required of me was to check in with them as frequently as possible. I was super excited because the process to even be CONSIDERED for transplant surgery is extensive. I did all the blood work, finished the laundry list of checkups that the Kidney Transplant team of doctors wanted the results of, such as CT scans with and without contrast dye, to examine in order to determine if I was healthy enough for surgery. Thankfully, everything came back normal. Once the Kidney Transplant team reviewed my case and okayed it, I was told to just stay in touch and check in frequently. I did just that, only to be told a few months later that I was taken off of the Kidney Transplant list due to non-communication. This completely bummed me out, but I was too exhausted at the time to contest anything.
By Nautica Heddlestenabout a year ago in Chapters
DYING BUT NOT QUITE DEAD, LIVING BUT NOT QUITE ALIVE
Hello, everyone! Let me start off by saying that this is NOT my first time attempting to start a Blog in order to help me cope with my medical condition(s), I just never gotten around to actually going through with making one. So, I would like to thank you all for having the patience with me and sticking around to read about my struggles with Chronic Kidney Disease and every new hurdle I have to overcome throughout the process.
By Nautica Heddlestenabout a year ago in Chapters
