Leann McCoy

Living with a Chromosome Disorder

What makes me want to write about my son’s chromosome disorder? At the moment, it’s to bring awareness. While I write this, I just comforted Gray out of a really nasty night terror, which can happen for even a typical child. But for him it’s a bit different. He just woke up out of the sleepy haze of his morning dose of anti-anxiety medicine. I hate the side effects of the drug, but with my son, you control the anxiety, you control the seizures. He’s gone seizure-free for the most part for over a year. But then you have to deal with the backlash of the nasties that pop up now that the seizures and anxiety are controlled.