Jeffrey l Stewart

How to live with VCP Disease

Hi I am a 55-year-old man in Tennessee and I was born into a family that has what in the olden days they would call a curse. This disease actually has multiple diagnosis which was not cleared up till the late 90’s early 2000’s when a mutation of the vasolin containing protein gene was discovered thru research by several doctors thru research covered by the Muscular Dystrophy Association. Which now we know the disease as Inclusion Body Myopathy, Pagents Bone Disease, With Frontotemporal dementia (IBMPFD).