Michael-Christopher Suman on Turning a Small Initiative Into a Global Movement for Rare Disease Awareness

During my visit to Chicago Site 1, I had the privilege of sitting down with Michael-Christopher Suman, the visionary founder of Detailing for MCAS. His youth-led nonprofit has transformed a simple act of service—car detailing—into a global effort to raise awareness and funds for rare diseases.

This was what we had said to each other that day — a conversation about compassion, leadership, and the power of starting small.

Zhan Wu: Can you tell us how you grew up and what first inspired your passion for helping others?

Michael-Christopher Suman: I grew up in a family where compassion was non-negotiable. My mom has Mast Cell Activation Syndrome (MCAS), a rare and often misunderstood immune disorder. Watching her face daily challenges that most people couldn’t even name changed me. It showed me how invisible illnesses can isolate people. From that experience, I learned two things, empathy is powerful, and awareness saves lives. I didn’t want people like my mom to keep being overlooked. That’s what drove me to act—even if it meant starting small.

Zhan Wu: Tell us about Detailing for MCAS—what it does, and what you’re trying to change in the world today.

Michael-Christopher: It started as a simple idea. I loved cars and detailing, so I began washing neighbors’ cars to raise money for MCAS research. Over time, that small effort grew into a youth-led nonprofit that blends entrepreneurship, education, and advocacy. Our volunteers raise funds, host awareness events, and educate their communities about rare diseases. So far, we’ve raised money for research, patient resources, and public education. Our mission goes beyond fundraising—it’s about proving that ordinary people, especially young people, can create extraordinary impact through empathy and creativity.

Zhan Wu: Can you share the story of how it all began—your “Aha” moment?

Michael-Christopher: It really started in my driveway. I was detailing cars to raise money for MCAS research, and I noticed people stayed to talk. They wanted to learn about the disease. That’s when it clicked—awareness spreads through connection. Each car turned into a conversation, and every conversation planted a seed of understanding. I realized that if one person could be inspired to care, hundreds could build a movement. That’s how Detailing for MCAS grew from a bucket and a sponge into a global initiative.

Zhan Wu: What has been one of the most meaningful moments on this journey?

Michael-Christopher: I once received a message from a mother in another state. Her child had MCAS, and after seeing one of our awareness posts, she found a specialist who finally diagnosed her daughter correctly. That message reminded me exactly why we do this. Awareness doesn’t just inform—it changes lives. It’s not about numbers or recognition; it’s about people finally being seen, heard, and supported.

Zhan Wu: You have created a global change and raised over $100,000 at the age of 16, what advice would you give to other young people who want to make a difference?

Michael-Christopher: Start small—and start now. You don’t need a perfect plan or the “right” moment. Most meaningful ideas begin simply and grow from sincerity. Surround yourself with people who share your purpose. Passion can spark a project, but teamwork builds a movement. Also, don’t be afraid to fail. Every challenge you face becomes part of your growth as a leader.

Zhan Wu: What’s your next steps Detailing for MCAS?

Michael-Christopher Suman: We’re expanding into new areas and launching more Youth Connection Programs to connect students with scientists and healthcare advocates. I want to empower more young people to take initiative in health awareness and community service. My hope is that Detailing for MCAS becomes a model for youth-led advocacy—proof that compassion and collaboration can go global.

Zhan Wu: Do you have any final thoughts?

Michael-Christopher Suman: Change doesn’t always start in boardrooms or big cities. Sometimes, it starts in your driveway—with a bucket, a sponge, and a cause that matters.

Takeaway

Small acts, done consistently and with heart, can build global movements.

Michael-Christopher Suman has shown that empathy, when put into motion, is one of the most powerful tools for change.