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The Emergency Contact

Chapter Twelve: The Diagnosis Wasn’t the End. It Was the Start. Right? Right???

By Laura Published 6 months ago 2 min read

There it was. The letter.

Four paragraphs of clinical language that confirmed what I already knew, my youngest is autistic.

Cue the fireworks. Or the paperwork. Or… nothing, apparently.

Because for all the buildup, all the ticking boxes and sitting on waitlists and spelling things out to five different professionals who all promised to “circle back”, the actual diagnosis didn’t come with a parade.

It didn’t come with support, either.

Just… a new folder and a sense of déjà vu.

This wasn’t my first time in the diagnosis chair.

We’d done this with her big sister, the appointments, the reports, the hearing people say “complex” like it was a personality trait.

So I didn’t cry this time.

I didn’t spiral.

I already knew the routine.

Because here’s the wild thing: a diagnosis doesn’t fix anything.

It’s not a golden key to services or understanding.

It’s a laminated badge that says,

“Congratulations! You were right, now please continue screaming into the void.”

We still had to jump through every hoop.

We still had to fill out forms asking things like “Does your child respond to their name?”

(Which, by the way, no - not when she’s mid-spin and conducting a full-blown silent opera with a spoon.)

The meetings stayed the same.

The support stayed vague.

The world, predictably, did not shift.

But I did.

Because this time, I knew the shortcuts.

I knew the wording.

I knew how to advocate like a seasoned caffeine-fuelled lawyer with a side degree in emotional restraint.

I didn’t waste time on mainstream placements that were never going to work.

I didn’t let anyone fob me off with “see how she gets on.”

I got the paperwork done, pushed the right buttons, made the right noise, and just like that, she skipped straight to the same special school as her big sister.

Same staff, same routines, same transport.

The first morning drop-off was less of a breakdown and more of a careful letting-go.

No panic.

No fight.

Just… relief.

And as I walked out those school gates, I didn’t cry.

I grinned.

Because we’d made it past the bit where people try to force your square-peg child into a round-hole system.

We skipped the gaslighting.

Skipped the sink-or-swim years.

Went straight to safe.

She was still her.

Still pointy and non-verbal and prone to emotional weather systems.

Still wild and wonderful and completely, unapologetically herself.

But now she had a place built for kids like her.

And that is the difference diagnosis can make, not because it changes who they are, but because it opens a door you already knew existed, but had to fight for someone else to unlock.

So yeah, the diagnosis didn’t come with confetti.

But it came with a timetable that makes sense, staff who already know her name, and the first real chance we’ve had at stability since this whole adventure began.

And that feels like a start.

A real one.

Even if it’s written in black and white and smudged with coffee stains.

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About the Creator

Laura

I write what I’ve lived. The quiet wins, the sharp turns, the things we don’t say out loud. Honest stories, harsh truths, and thoughts that might help someone else get through the brutality of it all.

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