Struggles of a CP mom.

A neurologist once told me:

“The damage is done. It cannot be repaired.

Your only option is to maintain with therapy.”

And today, I heard the same mindset again.

Cold. Final.

As if hope has an expiration date.

And now I understand —

why we keep traveling.

Why we cross borders for therapy, for care, for POSSIBILITY.

And why I have taken the therapy in my own hands…

Because too many here still believe our kids have a limit.

That their potential has a ceiling.

But I’ve seen too much to believe that.

And I won’t stop advocating.

I won’t stop preaching to medical professionals who have it wrong.

Because they need to see what we see:

That progress is possible. That healing takes many forms.

And that our kids are not broken.

We don’t chase miracles.

We build them — with patience, therapy, faith, and relentless love.

Continued…

After explaining all the different therapies we have done and places we’ve been, he was completely lost and confused. And asked “why?”

I looked at my husband and we both stared at each other for a moment and I responded “well because here in Italy they are not providing the best options for my children.”

He responded “Who told you to do these therapies?”

“I am connected with various moms and gained knowledge from instagram.”

He looked at me completely baffled as if we were the first ones that have don’t anything like this. And made me feel my child was being labeled at first glance.

I will be honest this doctor made me feel like I was doing it all wrong, and he isn’t the first that we have encountered here in Italy.

Over the years I have spent countless hours googling and searching for every treatment option out there.

• I’m made to feel emotional, irrational, or overprotective.

• Important questions go unanswered or are dismissed.

• There’s resistance to referrals, tests, or alternative treatment options.

I have take therapy courses to help me understand more about this complex diagnosis. I have contributed to countless of hours of research to find alternative methods and techniques. My children deserve a fighting chance, and one method of treatment is not the answer.

I have witnessed the results of alternative and homeopathic treatments. These have included the improvement of brain function, sleep, help with pain management, and much more. More importantly, these treatments are giving my boys a chance to live a normal life.

Throughout this experience, there have been other doctors like the neurologist. I have learned to advocate for my boys and be confident when talking to medical professionals. I hope that our family has touched their hearts even just a little, so that they may change their views and help many more children like Oli and Theo.

From my experience Too often, doctors overlook what I see every day. I want to make sure every treatment, therapy, and option is explored—not just what’s convenient or standard.

My children deserves a full, thoughtful approach—because their life and potential matter.

I’m not asking for favors. I’m demanding real care.”

Doctors stop gaslighting my children!

Familes with kiddos with Cerebal palsy or any disability should be given more hope and provide guidance and therapy options and that fits for each specific situation, every case of cerebral palsy is not alike.

A tip I have learned over the years…

When you’re informed, you’re empowered.

💪 You are your child’s greatest advocate.

We will never stop advocating for children with disabilities.

Because a diagnosis doesn’t define his capabilities and progress…

-written by a mother who won’t give up fighting for my child’s rights